Day 199 – 205

After having such a good week, I was all ready for this week because I knew that I was going to get the steroids again. On Monday, March 4th, my blood counts went down and my ANC was 1130, Hemoglobin 11.8 which was not that bad. I actually handled everything on my own that day as daddy got an important call so he was sitting outside. I knew all my meds that I took in the morning and reported them to the nurse; got my port accessed and later my nurse took me for the chemo.

I would say that it was a rough week for me. The best part of the week was that I started with my home instructions for Spanish.  My home instructor was super nice! Thanks to her, I think I did well in my Spanish Quiz. Can’t wait to get the results. After first few days, I started with my back and belly pain. It was so hard to eat anything even though I had the urge to eat because my belly was so bloated that it felt like it was going to burst open. I know I made my dad go crazy as I would I ask him bring something from outside and then by the time he came I just could not eat anything. I would just lay down all the time especially in the evening time because my body felt so heavy and sore.

On Sunday March 10th, I was feeling really down with lot of pain in my lower back and the hip region. I was also sad that my grandma was going back to India. She took such good care of me and helped me a lot with feeding me with lot of patience. I will miss her a lot! But at least my other grandparents are here now with me to help me for next few months. Later that day, my pain got so bad in the back and the hips that I could not even sit or lay down. It was the first time, I just could not distract myself and stop my restlessness and complaining about my pain. My mom had to call the hospital to speak with the doctor to find out if I could take pain medication.  Thank god I was able to walk and move around otherwise I would have to go the emergency room. The doctor was okay for me to take the pain meds as long I did not have the fever. Oh! What a relief! It felt so much better after taking Tylenol and finally I was able to sleep through the night.

18 thoughts on “Day 199 – 205

  1. The Dreher Family March 17, 2019 / 9:33 pm

    Hi Arjun,
    We think of you all the time and continue to read your posts. You are so inspiring to ALL of us! Keep staying positive and teaching us through your experiences and wise words!!
    The Drehers


  2. Anvi Sharma March 18, 2019 / 11:27 am

    Hi Arjun!

    Are you ok? My mom told me that you were in the hospital. Hope you get better soon!

    Anvi Sharma ;D


  3. Sravya marella March 18, 2019 / 11:33 am

    What going to happen next? Are you okay?


  4. Anvitha Banda March 18, 2019 / 11:38 am

    Get well soon! We miss you at school! It’s not the same. Hope you can fight leukemia!


  5. Ansh Agarwal March 18, 2019 / 1:05 pm

    Hey Arjun,

    Hope you get better.

    -Ansh Agarwal

    Ice Hockey Player for NJ Stars


  6. Nicolas Nsenkyire March 18, 2019 / 1:06 pm

    Hey Arjun,

    Hey, this is Nicolas Nsenkyire. I hope you feel better. You have been a great friend to me and I hope you feel so much better.

    Good luck bro,
    Nicolas Nsenkyire


  7. Mani March 18, 2019 / 1:10 pm

    Hi Arjun. I hope you feel better. You are a great friend and the best at hockey. I can not wait until you come back to school!!!

    you will be okay.

    From mani


  8. Connor March 18, 2019 / 1:21 pm

    In the gym they were talking about you and I really hope you feel better I hope I can go to your house Some time and beat you in chess.😀JK you will crush me


  9. Anvi Sharma March 18, 2019 / 5:40 pm

    Feel better, even though I said it already.😛😁😉



  10. Shane Khurana March 18, 2019 / 8:21 pm

    Hi Arjun this is Shane from Ms. Vitanza’s 3rd grade class, and I hope you feel better and I hope the treatment goes well and I hope you feel better

    Good luck bro,


  11. Jerehmiah Guy March 19, 2019 / 9:22 am

    Hi Arjun!
    This is Jerehmiah! I hope you are feeling better! Get well soon!
    I was in your 2nd grade class!
    Jerehmiah 👍😂👍👍👍👍😂😂😂


  12. Ben March 19, 2019 / 10:38 am

    Hope you feel better


  13. John Marley March 19, 2019 / 11:34 am


    I hope you feel better, stay strong. We think about you and pray for a speedy recovery daily. Can’t wait to see you back on the ice.

    Coach John


  14. Andrew March 19, 2019 / 8:17 pm

    hope your felling well i hope you felling well ( ͡° ͜ʖ ͡°)


  15. Ansh Agarwal March 19, 2019 / 9:03 pm

    Hey Arjun,

    I hope you feel better soon. I hope to play you on the ice sometime. We can do 1v1 together.
    ( ͡° ͜ʖ ͡°) 🥅 🏒🥅 🏒

    Feel Better Bro,

    Ansh A.


  16. Aashna March 26, 2019 / 9:17 pm

    Feel better!


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