1st Clinic visit
Today, August 30th I was scheduled for my clinic visit for my next round of chemo and the lumbar puncture.
We all left the house at 7 AM to reach the CHOP clinic by 9 AM as it gets very busy in the morning. I reached there and they again inserted the needle in my PORT for bloodwork and to give the chemo later. I was not allowed to eat anything after 11 PM last night and I was really getting sooo hungry while waiting for my turn for GA (general anesthesia). I waited and waited and finally I was able to get in at 11 AM so 12 hours without the food and drink.
I was constantly thinking of the food the whole time and finally settled on spicy Dumplings with peanut sauce. My parents were having a good laugh as they never hear me craving for food. The whole procedure took 20 minutes and I woke up after 30 minutes in the recovery room, asking for food. My dad was standing right there with my Dumplings. He walked 2 miles each way, in this hot weather, just to get me those dumpling. Thanks Dad….you are the best! I gobbled them within few minutes and my mom was looking at me with an astonishing look. MMmm.. they were delicious!
Then I had to wait for my IV chemo medicine. Doctor said that my electrolytes look good. I heard her say that my platelets were low and also my hemoglobin. I got the platelet transfusion and will wait for the blood until next time. My mom was pleased to hear that the liver enzymes were way down now. I have no idea what that means but I guess it is something good to be happy about.
Finally we had to drive one and half hour just to get home. It was a tiring day but at least we get to come back home. I felt great after I came back. I guess I am doing well with my medications. My mom always worries every time I feel a little warm, there she is with the thermometer checking my temperature. She looks so relieved that it is normal temperature. I had fun with my little brother while playing with the lego car and then making videos of them which are you tube ready.
In the evening, I helped my mom put together the school supplies to get ready for the first day of school. I can’t wait to go to school next week, meet my old friends and make some new ones!
Hi Arjun!
We had a great time visiting you and we hope you did too.
Feel better again (get it?)
-Brandon & Brendon
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Sup Brandon and Brendon, I am doing great! Thanks for coming the other day. I had to change the shirt a little… I can’t wait to play with you guys…may be we will get together soon to feel better !!
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Hi Arjun,
I hope you are feeling better. I can’t believe you built that 1,000 piece LEGO car. It’s huge! I’m glad you got to go to school. I’m sure your friends are going to be glad to see u! I like reading your blog, I have learned so much from you.
Chase
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Hi Chase, I have learned a lot about you as well… That you are very kind. Thanks for reading my blog. I will keep you updated 😁😁
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Hi Arjun,
You have been such a brave and positive person over the last several weeks! I can’t believe all you have been through.
The determination and stamina that helped you build that Lego car in TWO DAYS will also help you beat Leukemia and get back to your old life.
I loved reading that you “love school” and I’m happy you can start school this week! I know you are really going to love 5th grade at ARIS.
I will be reading your blog regularly and praying for you. Stay strong!
Hugs,
Mrs. Moss
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Thanks, Mrs. Moss, I am doing great. I am getting ready to get smarter than other kids by reading a lot of books.. I wish I could be in your class longer because you are so nice and kind. Your support and offer to help me has left me no choice but to work as hard as you.
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Wow Arjun you look good. We love reading your blog and pray your chemo trips get better soon. I know it’s a long drive and staying empty stomach for that many hours is challenging…. but you are a real strong kid!! We pray for your speedy recovery each day.
Love you!
Neha Gautam
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Thank you for encouraging me Aunty and Uncle! Now I don’t need to stay hungry for a long time. I am doing awesome! I was so surprised that I reacted so good to the chemotherapy.
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