I was so happy when I woke up Sunday, January 6th, morning after coming from the hospital. I had very good night sleep in my cozy bed. But as the day progressed, my throat started to get worse and by Tuesday, it was so bad that I could not even swallow the water. I was taking the medicine with so much difficulty. I was getting irritated with every little thing and everyone asking me what I want to eat. I knew this was going to happen and I had told my mom on Sunday itself that it gets worse on the 3rd day. I tried the warm water gargles which helped a little bit. My mom wanted me to go see the doctor on Wednesday morning because she did not want to see me suffer. But when I woke up Wednesday morning, I was a little better so I did not go to the doctor. I managed to eat some liquid soft foods that day. I even attended my home instructions that day. My teacher said that I am catching up fast with my all my classmates.
On January 10th Thursday morning, I had to go to the clinic to get my counts checked. The doctor said that it is because of Methotrexate , I get the Mucositis, which means I get sores in my throat. I have to take this medicine 2 more times this month. I met the dietician there who said that I have lost around 5-6 lbs since the beginning and I need to eat a lot of fat to gain weight. If I do not eat and keep on losing weight then she will have to put the nasal tube or feed me through the port. I do not want that. It made me very worried and sad. I told my dad and mom that I will try my best to eat. I think eating has been the hardest part of the whole treatment journey for me. To cheer me up, I got the good news that my ANC was 2700 which is in the normal range which means I could go out for sometime if the weather is good. I felt much better on Friday and was so excited for the home instructions for Math and Science. Now I do not have to do much in home instructions because I am catching up in class with the Vgo robot. I got my Math test paper where I scored 100% and my dad was so proud of me! My teacher gave me assignments for next week too as I will be going back to hospital again.
On Saturday, I went out to see some family and friends and my throat was doing much better. I ate well and I was so proud of myself..haha! My goal is to gain 2-3 pounds before i go back to the hospital to show to the dietitian that i am strong and handle this problem too. I had my friend come over for sometime which make me feel so good to hang out with someone. I received the card from school nurse who is always thinking about me. I want to thank her and my school counselor who is always trying to help me with my Vgo robot and any other school concerns. My school has been so good to me and I want to thank everyone for being so accommodating!