So the highlight of this week was the one day trip to Magic Kingdom in Orlando, Florida on Tuesday, May 7th. Again thanks to my hockey coach Marley, who has been by my side since the beginning and the Sunshine Foundation.
The Dreamlift operation is organized by the sunshine foundation along with the local police officers and the firefighters. They took 100 children with their parent on a chartered plane to Disney world for a day. It was amazing and surprising to see that at 6AM there were so many police officers, firefighters, young people dressed in Disney characters to support and cheer up kids like me and made us all feel so special. It always makes me wonder how people make time to support strangers. Thank God my counts were good and I could experience something like this. For one day, I forgot everything about my illness and I enjoyed a lot with my dad on different rides that I could do and just walking around a place other than hospital. I did miss my little brother who was very happy for me. I gave the interview to the ABC news anchor to express my gratitude towards the foundation. By the time I came back in the night, I was exhausted and went straight to bed.
Thank you coach Marley for enrolling me in this so that I could experience such an amazing adventure!
On Thursday, May 9th, I had to go back again to the hospital for the second dose of Vincristine and methotrexate. I lost another 2 pounds but at least my counts were better. My ANC was 3120 and my Hb was 11.1. My dad and I spoke with the nutritionist and the doctor about my loss of appetite and the weight loss. The nutritionist talked to me and told me that I really have to try to eat because if I do not eat then the last option is the nasal tube. I am scared; I am worried but just cannot eat even though I take zofrin for nausea. I promised the doctor and my parents that I am going to try harder. I did do little bit better on the weekend and my parents were happy. On Saturday, May 11th, I really enjoyed the good weather and after very long time went to a store with my parents to shop around. On Mother’s day, May 12th, I thanked my Mom for all she has done for me and continues to do for me because without her I could not have been so strong in dealing with this disease. My mom said that the best gift would be if I could start eating well and get better. I told her that I will get better soon and will take care of her then!